65 million reasons

Every day, 65 million people in the world are hoping for a cure – for Epilepsy.

Epilepsy isn‘t exactly rare. 1% of the worldwide population is affected, that‘s 1 person in every 100 people.

Like Prince, the late musician: “I used to have seizures when I was young. My mother and father didn't know what to do or how to handle it.”

Or actor Hugo Weaving (known as Agent Smith from The Matrix blockbuster trilogy): “I probably had one major seizure a year. Every now and then I’d fall down and wake up to someone saying, 'Are you OK?'”

And yet, healing epilepsy is hard because this disorder is highly complex, resulting in several known variants. Some are pretty mild and vanish spontaneously after a few years, while others are devastating and can cause 100 seizures per day.

When drugs don‘t help

Why Epilepsy occurs and how it develops is still not fully understood. Even diagnosing it requires many tests and experts analyzing the results.

For most patients, antiepileptic drugs can help a great deal, suppressing their seizures completely or to a large degree. However, finding the one drug that helps and has no major side-effects is often a longwinded process of trial and error. The big pharma companies have basically stopped searching for new substances after decades of research and significant investment, only to see new candidates failing in various stages of clinical tests.

This lack of options is very burdensome for the 30% of patients who aren‘t responding to known antiepileptic drugs. This is called “drug-resistant epilepsy” (DRE) and the main focus of Epinext.

Epinext, one of the largest epilepsy structures in France, has been put in place to battle drug-resistant epilepsy:

  • to make the right diagnosis
  • to understand why and how this is happening
  • to heal with innovative new therapies
  • to share this new knowledge with patients, scientists and clinicians alike

Unfortunately, only a small fraction of patients which could respond well to neurosurgery or other therapy approaches are referred to well-equipped and multi-disciplinary epilepsy centers like Epinext.

That‘s why we‘re encouraging patients, their families, health practitioners, scientists and journalists to see what Epinext can offer, how Epinext can help, to reach our goal:

One Mission: Zero Seizures.

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Uniting doctors and scientists

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Diagnosing

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Understanding

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Healing

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Sharing

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